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Showing posts from 2013

Chronic pain does exists even if it seems invisible

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Having chronic pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about chronic pain and its effects, and of those that think they know, many are actually misinformed. In the spirit of informing those who wish to understand …
… These are the things that I would like you to understand about me before you judge me… Please understand that having chronic pain doesn’t mean I’m not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I probably don’t seem like much fun to be with, but I’m still me– stuck inside this body. I still worry about school, my family, my friends, and most of the time – I’d still like to hear you talk about yours, too. Please understand the difference between “happy” and “healthy”. When you’ve got the flu, you probably feel miserable with it, but I’ve been in pain for years. I can’t be miserable all t…

New splint

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Aka a bit of plastic which restricts movement. Not making it sound appealing am I really? I used to wear an AFO splint on my left leg with a hinge from about the age of 7 till 10, so not that long but I did make massive improvements and I was so happy when I no longer needed it and just had to use orthotics in the bottom of my shoes. I was able to wear 'normal' shoes and not big bulky trainers. I remember been so jealous of people's shoes. As I entered the big wide world of high school I would like to think that my cerebral palsy was not noticiable and unless I told you then you wouldn't know a thing. I remember about a term into year 7 and is made two new close friends (still best friends now :) ) and when I mentioned cerebral palsy they had no idea and in a way I liked it that way. It doesn't bother me if people know and I was trying to keep it from anybody if anybody asks I will happily explain. It was just year 7. You know what it's like settling down, I w…

It's been some time...

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The blogger is back!!!
I know, I know. It has been a while to say the least. Time has zoomed by and nothing has been left behind. That is changing today, I hope to restart this blog and start the ball rolling towards cerebral palsy awareness and acceptance.  High school is still, well, high school. Now in year 11 and quick approaching mock exams- with more revision, coursework and catch up sessions. Even though I'm one of the oldest students in school it doesn't mean that corridor get easier. In some respects it's harder- the year 7's seem to be bursting with more energy every year and like to trip me up or demonstrate getting your balance back like the first time somebody goes ice skating and attempts to stay on their feet. 
I hope to be posting more in the future about changes which have happened and about what I have been up to :)
~Chloe x

Friends & family

Without them I wouldn't be nothing. Seriously. I would be very boring and probably seem even more crazy then I already am. (Is that possible!). Just because my friends and family are crazy it makes me seem less crazy, and what others would say is 'normal' (even though nobody can define normal) and if you are 'normal' then go out and be crazy. You will surprise yourself because it is a lot more fun.

At school I prefer the floors of the corridor then walking along them. Also I seem to carry the invisible brick round me and just trip up. That's where my friends come in (not only that though) they help me navigate around school and pack up backs so I won't be the last person out of the classroom (even though it normal happens). Also to come in the lift and fight who will press the button. Friend aren't just there for that, they cheer you up when you are a moody cow and just there to make the 6 and a half hours go as fast as possible and the 48 hour weeken…

Quotes...

I like love quotes. Especially when they describe exactly what you are feeling, and can be really inspirational. Some of my favourites would be-

fall down seven get up eight
this is probably because I spend half my time on the floor when I'm walking. Balance isn't one of my strengths, but that doesn't mean I can't just get back up with help from my amazing friends and start the challenge of getting to the other side of the swam of bees which is meant to be my school corridor. Or getting up those mountains that other people call stairs. Just take each day as it comes and fight the challenges to get you to another day because no challenge is too big if you take it one step at a time.

whether you think you can or can't, your probably right
I believe that the only disability in life is a bad attitude or been pessimistic all the time. We all have those times in our lives when being positive is the last thing you feel like doing. However there will always somebody out th…

Don't you just love it when your head hits the pillow and you could sleep for years?

Well that's what I was like last night. Yesterday I went to an aqua festival with school. It was loads of fun, but very tiring. By the time we had go to the coach it was peaceful. Everybody was ready for a nice rest.

It was the 3rd race when I took a turn for the worst. I had 7 races. As I lined up ready to get in the pool I could feel my left leg just getting tighter the more I stood and my body aching. (probably because of the shock of the race before). I wasn't going to let it get the better of me and just did the race anyway.

However once I had finished, (bringing up the rear in joint last), my legs froze as a stood on the bottom. Trying to figure out the easiest possible way to get out. Once I was out with the help of friend it seemed the whole room had become an ice rink, all wet and not making getting back to the bench the easy task.

Overall it was a great and I had loads of fun swimming (and missing a maths exam in the process). The teacher wouldn't let me do …

World cerebral palsy day

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Mixed emotions- today is special and meaning full. I just which I could have done more. People come up to me and say "aww are you ok, I feel really sorry" but why I would not change my condition for the world. Less pain would always be nice, but I know things could be ten time worse. There will always be somebody out there who is worse off then you so why is it a big deal.

I am proud to have cerebral palsy

Cerebral palsy isn't just who I am or just a label which I have just had to learn to cope with. Cerebral palsy has influenced me and has made me a stronger person and also given me a better outlook on life. Without cerebral palsy I probably wouldn't have achieved half thing in my life which I have. I know that sounds a bit stupid, but its true. When people look at you and say "ohh no you couldn't possible manage to do that" that's when I prove them wrong. A quote they use in school a lot would be

whether you thing you can, or can't your proba…

Hi, hey & hello...

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This my first post as I enter the hopefully wonderful world of blogging. Blogging has always been one of those things I have wanted to get round to doing but before now other things have taken its place. The aim of blogging is to express my views and to use it as a hobby which can be built up over time. Been a student with mild cerebral palsy has its challenges and extra hurdles but can be reward and I wouldn't change it for the world. (Good job really because I'm stuck with it)
Hi, I'm Chloe!
I have mild cerebral palsy which affects the left side of my body. I was diagnosed with it when I was in year 2. I wore a splint on my left leg during the day up until I was in year 6. I then changed to orthotic in my shoes and a night splint and this is still how it is at the moment. Over the years I have had Botox injections every 6 months for a few years and there was talk about serial casting but it never happened. I was born 8 weeks early and was in intensive care for a long ti…