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Showing posts from 2014

'The Blog of the Year' ... 2014!

Hi, hey, hello and welcome! 
Firstly I'm going to apologise for the length of this blog... But then I'm going to take it back, because it may be lengthy, but it's a good one!
Below peoples highlights have been compiled from the amazing year of 2014, this blog post has been taken from CP Teens UK, enjoy!!!

What I want my peers to know

Hey everyone! Sixth form has well and truly started with work mounting. Also new pupils come from other schools, this means I have been able to make some new friend which has been great. On the other hand, the minority have seen it as an opportunity to make judgment on something which they will know very little about- the purpose for this post. What I want all my peers to know.   The worst thing about having a disability is that they see it before they see you, before they get the chance to know you. I haven't even opened my mouth, yet I know you have a preconceived idea about me, but that's okay. I guess if you have something different from others then it is bound to happen. I mean, the stares, they are normal, that's part of human nature, I can life with that bit. It's the glares of disbelieve, that's what is upsetting. 
Hear me out when I say what you see is a tiny part of me. A tiny part of what makes up me and my personality, but also a tiny part of my medical …

Hemiplegic?

   What on earth is that!? Well I will tell you. Hemiplegia or been hemiplegic can be a type of cerebral palsy which only affects one side of your body. Ta da! However hemiplegia can be caused by strokes and other types of things but it will always just involve one side of your body. Also the hand is normally more affected then the leg.
   As always, I'm breaking tradition, I'm the other way around. Meaning I'd say my leg is more affected then my hand despite it being very mild. If we were to get all technical (nothing wrong with a bit of technicality in life!) I have mild left hemiplegic cerebral palsy, a mouthful I know. All that means is that my left side is affected by the cerebral palsy, whereas my right side isn't.     Why am I saying this? Are you even interested by the rabble I call a blog? Well I hope so! If not I'm not forcing you to stay :)  *Drumroll please!* It's national hemiplegia awareness week! A whole week! :O    A whole week with the spotlight…

See the person not the disability

Can I just say that again- see the person not the disability. Now I'm sure you would have heard this quote at some point. I know I have, but that might just be because of my love for quotes in the first place. However (never straight forward is it!) this quote I have to disagree with.
I always like to say that cerebral palsy is one piece from the thousand piece puzzle which makes up me. Therefore part of me. However I feel this quote is trying to separate the two, and that you can't be a person if you have a disability. 
Who knows- probably reading far too much in to this (English literature student alert!). 
I mean it's not something to be embarrassed about, or something that you should hide, if that's even possible to a certain extent. Normally if you are relaxed by the whole thing then so is everyone else- taking out the anomalies here. 
In a way it is true though. A disability shouldn't be the first thing you see/ think about when you see a person because it's …

Summer Success

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Unfortunately all good things must come to an end, and in about a week I will be going back to school and starting my A Levels in the sixth form. However during this very long summer break (due to finishing early because of exams) it has been quite successful if I do say so myself! Successful in things I have achieved but also just all the things I have managed to cram into the weeks off. So if you are going/ gone back to school good luck with this year! First off I survived my GCSE exams- all 21 of them! (far too many in my opinion) I’m still alive, despite thinking I was going to turn into a walking text book full of random things like osmosis and the literary themes surrounding the novel ‘Of Mice and Men’. All the preparation goes in and it’s all over in an instant (3 weeks to be exact). Before I knew it my first French exam had turned into my last RS exam, meaning it was summer time!

I love to read but never seem to have time to sit down and just read. Also because of exams and rev…

Why write a blog?

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I've been writing this blog for about 18 months, and continue to update it. Why? Well if you are reading this post then there is your answer! The readers, (despite how little there may be). I believe that people read my blog for a few reasons, for example a lot of my readers have cerebral palsy themselves and I talk to quite a few of you *hey everyone!*. If you read it and have cerebral palsy then you may do this because you can relate to what I am saying or you are just curious to what I'm getting up to. However if you don't have cerebral palsy you may know someone who does (this could be me), or you are just here because you can!
What if I had no readers, would I still update it? Yes I would! Therefore if this post doesn't get a single view, don't worry (you can't get rid of me that easily) I will still post and continue to do so until I have talked about everything I can possibly think of.
Due to the blog been open on the internet it means anybody can read it…

Wheelchair Attitudes

This blog is focusing on part time wheelchair users. A topic which can be ignored.  For those of you who don't know, I'm a part time wheelchair user. I may not be too happy over this fact, it's not really something to dancing about, but yes, I am a part time wheelchair user. Do you get the message? People can be in a wheelchair part time- meaning that they can walk, maybe just not as far as you or for as long as you. Socially people can often find this hard to accept and due to recent experiences, people really do need a hand in breaking these social stereotypes. I firmly believe that stereotyping have led to a stigma surrounding wheelchairs which I have experienced (and are affected by in my own opinion and the social conventions of others). Down to things deteriorating I've only had the big bit of metal (wheelchair) AKA- Walter (yes I have given it a name!) for about a year, So you could say I'm still classed as a newbie- who is trying to act like a pro.
I have nev…

Undiagnosable

Unknown, Unheard of, I prefer unique, Strange and weird, I am not weak.  The look in your eyes, The look of confusion.  As an unsolved problem, A mystery to all.  I wait.  I wait for answers, To unravel it all.  Finding the puzzle piece, I wait.  The day will come, Sat on the horizon.  As the Undiagnosable , I wait.  
~Chloe

Life for people in orbit of disability

I would gladly like to welcome my first guest blogger ever on Cerebral Palsy (CP) student! Thank you so much for writing this Alex. Its great. I would like to take this time to say thank you so much Alex, not just for the blog but for everything over the past 5 years, you are amazing!
Enjoy,
~ Chloe

"Many people don't understand exactly what people have to go through when they have disabilities. I don't pretend to understand even half of it.

 Saying that, however I believe I have a bit more of an understanding than others. This is almost wholly down to my best friend Chloe. Although she's puts on a brave face daily, she always smiles and does her best to survive without any form of aid, I know her well enough to see the stress and strain it puts her through, and however tough, however difficult life is for her, I'm honoured to be there for her, no matter what. If she just needs to rant at someone (god knows how many essays she texts me) or if she just needs an arm…

'How I Fall' by Anne Eliot book review

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MUST READ RIGHT HERE!Recently an author- Anne Eliot, contacted me using the message function on this blog! (First time this has happened, was a bit unsure what the email was to start with....anyway) it was such a lovely email (thanks Anne). She asked if I would read her new book 'How I Fall'- been a book lover at heart I said I would love to. Beating the typical conventions of fiction literature the main character has left hemiplegic cerebral palsy with the symptoms resemble mine quite closely. Now that's something you don't pick up off a book shelf everyday! I'm afraid to say that at first I was excited to read the book, but expected it to be like the other books which I have read which contain the 'topic' of cerebral palsy (sorry Anne!). I have to say that I was presently surprised and this is the review I left on Goodreads (due to amazon refusing to let my review be published :-/ )

: "A uniquely, truthful, normal amazing love story... The truth can hur…

End of an era...

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Wow. I am happy to announce that I have managed to get through my GCSE's in one piece! After two years, homework, coursework, loads of revision, sleepless nights, and 21 exams later... I'm done! Well I say I'm done, just going to wait for results which I'm getting in August. However I know I can do nothing more and might as well enjoy my extra long summer with friends!  All good this must come to an end- when September comes I will be back to it all. Heading to sixth form to start studying A-levels. As much as I'm going to love relaxing during summer, I'm going to enjoy starting A-levels. Only doing four subjects, all which I hope to really enjoy.  After much debate I decided to take textiles, health & social, English lit and psychology. I was not going to take textiles, but looking back how can I not! I has to be my favourite subject by far, and I'm good at it (if I do say so myself). However it is not what I want a career I am wanting to go into.  In…

Labels created by disability

The conditions are merely a label which I am determined to break the written conventions which surround them. Labels provide a pre-printed view which can often lead to unneeded social stereotyping. We state ‘everyone is different’; yet disability is obsessed with grouping people together. Yes I know it is used as a means to treat people and in the medical world I believe it works to a certain extent. However if you take it out of that comfort zone you get hit by reality.
I believe that there is a great deal of awkwardness which spirals around mental and physical disabilities, but why? Scope have recently released ‘End the awkward’ videos on YouTube and I feel that they really do ‘hit the nail on the head’ in explaining that we too are part of the human race and have as much rights and deserve the same amount of respect. I am not saying that the reasons behind this it is because the community is rude, certainly not. There just isn’t enough education out there. I know that it is probabl…

Determination

When hope has turned out the light
You just sit there and stare,
Holding onto that goal in mind,
But will you really get there.

Pushing yourself to make it true,
Not knowing what more to do,
Because you don’t want to fall,
To where it all started.

You want to be like the rest,
But unique and special too.
You want to blend into the crown,
But stand out as good as new.

Been told you’re not going to make it,
Might as well give up now,
But it’s not as easy as that,
Why don’t they understand.

I don’t expect them to fully understand,
But acceptance would be nice,
How am I supposed to accept,
If they don’t give it a chance.

Explaining Things...

How am I supposed to do this,
When it makes no sense to me,
I’m hidden from you,
Hidden from life, but try to blend in,
Guilt building up as I reject you,
I don’t want to push you away,
Having no control of emotions,
Or not knowing what to say,
You ask “why?”,
But that’s what I ask myself,
I am not saying I’m sad,
I am Just confused,
I love my life, family and friends,
I just have obstacles that are higher,
Every day is a mountain,
Every day is new,
Every day is special,
And I am always thinking of you,
Don’t judge me for what you see,
Looks can be deceiving,
Get to know me for me,
But that’s quite hard,
Experiencing pain can change people,
Loosing myself each day,
Holding on to what I though was normal,
As it slowly slips away,
I will get back there,
Back to what is now unknown,
Having a goal in mind,
Just thinking of what it will be like,
Moving around so freely,
Without pain in sight,
Not having to plan every move,
And take things so slowly,
Wondering what it is like,
To just get up and go,
I am glad of what I have…

My Mask

Masks are used to hide and pretend,
Not showing what is really there,
Been a character or to defend,
Hiding what you don't what to share,

Holding it in,
Not letting go,
Hiding your feelings,
Not saying no,

To the simple question..,
Are you ok?,

Masks can hold the cracks in you,
Piecing things all together,
When you know you will crack,
Hidden from the world,

When it has turned to black,
But you really don't have a clue,
Because what you see isn't true,
But I'm hidden from the world,

Do you know who I am?

You all know who I am,
Seeing me as you walk past,
But you you really give a damn?,
Will your care always last?,

I may be lower than most,
So why push me further?,
Sometimes I'd like to be a ghost,
To get away from all the murmur,

The stares are so powerful,
From the people around,
That shouldn't make it allowable,
But that isn't what I've found,

Do you see behind my mask?,
All the secrets that I keep,
No one taking the time to ask,
About things that are ever so deep,

I am different in your eyes,
But I do not see that as bad,
I can get away from the lies,
Because of this I am so glad,

You don't know who I am,
Seeing me as you walk past ,
But you you really give a damn?,
Will your care always last?,

favourite quotes

May seem silly but I love quotes! I thought I would share my favourites with you. I know for some people (me included) it is exam season which can be stressful- here is some positive quotes to keep you going...
How am I going to be an optimist about this? The best thing about the worst time of your life is that you get to see the true colours of everyone. If your always trying to be normal you will never know how amazing you can be. Never let the odds keep you from doing what you know in your heart you were meant to do. To thrive in life you need three bones, a wishbone, a back bone and a funny bone. People cry, not because they’re weak, it’s because they’ve been strong for too long. The pessimist complains about the wind, the optimist expects it to change, the realist adjusts the sail. Ego- take off the E and let’s go! Strength doesn’t come from what you can do, it comes from overcoming the things you once thought you couldn’t. It’s supposed to be hard, if it wasn’t hard, everyone wou…

How does cerebral palsy affect you?

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I am so happy that I was able to write this post and publish it on national cerebral palsy day. A day where we can hope for more acceptance, also it's a day for me to remind myself how lucky I actually am. I have a great bunch of friends who are there supporting me all of the way and I have accomplished so much in my life, I love life and I have so many reasons for this. I may have bad day... But doesn't everyone! The good days will always outweigh the bad. Thanks again, hope you like it! Please check out CP Teens UK because it is a great blog which I would definitely recommend.

So here we go, Hi guys,    Most people will start off by saying their name, age and how cerebral affects them... Well I'm not. Yes I do have cerebral palsy, a name and an age. But it's not the most important thing right now. If you have cerebral palsy it can kind of become like an identity badge or a rehearsed speech about how it affects you, and normally a dumbed down way to get the point acro…

The spoon theory

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Hi guys, I found something online which I would like to share with you. It's commonly known as the "spoon theory" it can be applied to every chronic illness/ condition. I think it is a great way to give your friends and family an understanding which can be shown physically and easily understood. I do not instead to take any credit for it as I didn't come up it but I feel that it should be shared. Here goes...

The Spoon Theory 
by Christine Miserandino www.butyoudontlooksick.comMy best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.
As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward…

Exam season

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Don't you just love it? The count down for the start of my GCSE exams is quickly approaching and nearly in single figure. Honestly I'm scared. I haven't posted in a long time and I miss it, who reads my blog anyway! Revision is starting and everyday of school counts. Like everybody else the quicker you realise that this is make or break time the better. There are loads of revision session at school now which is really good. The one thing which is keeping us all rooted is the summer. The extra long summer, it's going to be great. When everybody is at school you can just chill; there will be no more homework, no more coursework, no deadline and most importantly no more exams! Unfortunately all good things must come to an end.... Next year I will staying on but in the sixth form. I am hoping to take textiles, English lit, health & social and psychology. I suppose it's just another step up the education ladder. Almost the oldest in the school; unfortunately that isn&…